The Dyslexia Debate: Professor Julian (Joe) Elliott

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debbie
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Post by debbie »

Molly de Lemos of 'Learning Difficulties Australia' provided a very helpful and comprehensive, yet succinct, response to a question about 'dyslexia' on a literacy discussion forum and I have obtained her permission to copy it in full to add to this thread:

In September 2005 a program on The Dyslexia Myth was shown on the UK Channel 4 Dispatches program. Following the reaction to this program the producer of the program, David Mills, published a comment on what he identified as the five major views about the future use of the term 'dyslexia': This comment was reprinted in the LDA Bulletin (Vol 40, Nos. 3 and 4, September/December 2008). See attached.

In summary, these five views were as follows:

View 1
The term dyslexia should be dropped completely, and replaced with the terms 'reading problems' or in more severe cases 'reading disability'.

While sympathetic to this view, Mills concluded the term dyslexia is so ingrained that a lot of people would still go on using it, and that it is a handy term for those trying to focus attention on the needs of those with reading problems.

View 2
'Dyslexia' can be redefined to describe all children who find it difficult learning to read because of phonological problems.

The problem with this view is that this could result in labelling up to one fifth of children as 'dyslexic'. Given that so many children have problems learning to read, this could be seen as applying a label of ‘abnormality’ to what is an entirely normal experience for quite a lot of children.

View 3
'Dyslexia' should only be used to describe children with the severest problems.

The problem with this definition is that it would not distinguish between children whose reading problems were due to poor teaching, and who would have learned to read if they had been properly taught, and those whose problems were due to underlying problems of neural processing, and who would continue to have reading problems despite the best and most effective teaching possible. It could also suffer from the difficulty of arriving at a cut off point, so that on one side of this line a child would be labelled dyslexic, while on the other, a very similar child would not be.

View 4
'Dyslexia' should be used only for the 1-2 per cent of children with a long-term reading problem who do not respond to the best school teaching currently possible.

This is the view that is supported by David Mills, and which he claims is supported by many leading researchers. It would mean that 'dyslexia' defines a clear group of children who are significantly disabled and for whom special help is both needed and justified.

View 5
'Dyslexia' should no longer be really associated with reading problems nor defined in relation to reading.

The problem with this view us that there seems to be little agreement on whether such a pattern exists, or if it does exist how at present it might be defined.

While I am sympathetic to View 1, I would agree with David Mills that it would be virtually impossible to get people to stop using the term dyslexia.

The only other option would be to find a way of defining dyslexia, or using the term, in a way that would be most useful in terms of providing support to all students who have difficulties in learning to read, according to their needs.

I think that adopting a definition of dyslexia based on View 4 is most likely to achieve this objective.

However, I would like to see the term ‘dyslexia’ replaced with the terms ‘reading difficulty’ or ‘severe reading difficulty’ when determining the need for support for students with reading difficulties within the school system, and also when discussing a student’s reading difficulty with their parent/s.

If a parent asks if their child has dyslexia, I would say that dyslexia is not a clearly defined term, and that it is better to focus on the particular difficulties that a child has and to try and help them to overcome their specific difficulties rather than to spend time and money getting a formal assessment of dyslexia.

With this approach, the term dyslexia may lose its appeal, and eventually come to be seen as a non-scientific term that does not carry weight within the scientific community.

I would also argue that eligibility for support within the school system for students with reading difficulties should not be based on a formal diagnosis of dyslexia, but should be based on easily administered tests of basic reading skills, including tests of word reading, text reading and spelling.

One does not have to spend $1000 or more to decide on whether a student can or can’t read.

More extensive assessment may be required in cases where the student does not respond to intensive intervention based on methods that have been proved to be effective with other children experiencing reading difficulties.

But such assessment should not be required to determine access to support for a reading difficulty within the school system.

Molly

PS An alternative categorisation of different views on dyslexia is provided by Susan Godsland on the UK RRF Forum. See

http://rrf.org.uk/messageforum/viewtopic.php?f=1&t=5930

Susan identifies three groups according to their view of dyslexia.

The first group believe that dyslexia is caused by a ‘specific brain weakness or 'glitch'; which can be readily diagnosed, and that people so diagnosed need a special form of intervention which can only be delivered by trained teachers who have taken courses endorsed or accredited by one of the prominent dyslexia organisations.

The second group agree with Group 1 that some people's reading difficulties are the result of a specific brain glitch (or glitches?) and have a genetic basis, but believe that there are at present no valid tests which can differentiate between the groups of ‘dyslexics’ and ‘ordinary poor readers’, and that scarce funds should not be spent on unscientific assessments for 'dyslexia', but the money should be used to provide all struggling readers with suitable interventions.

The third group don't believe that there is a specific brain glitch or that one will be found by brain scans or genetic research in the (near ?) future, and that the vast majority of struggling readers' problems are a result of weak, absent, muddled or delayed teaching of the extremely opaque English Alphabet code. While accepting that there are a tiny percentage of children who have serious language, memory or cognitive problems (not one specific brain glitch) that affect their reading, they see this group as just part of the larger group of children, including those at the bottom end of the normal range of ability, who need extra help. The focus of this group is on prevention rather than intervention.

PPS Susan Godsland also gives a link to a very interesting paper by Daniel Willingham, which includes a map of the errors in word reading (of familiar words) by various European countries at the end of first grade (see http://www.danielwillingham.com/1/post/ ... tries.html

The percentage of errors varies from 2 per cent (in Finland) to 67 per cent (in England).

Per cent of errors is substantially greater in countries that have an opaque orthography (Portugal, France, Denmark, and England) than in countries that have a transparent orthography (Finland, Italy, Spain, Greece, Austria, Germany, Sweden and Norway).
Many thanks to Molly. :D
Debbie Hepplewhite
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debbie
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Post by debbie »

I have been asked to circulate this information about the podcast below:


Podcast: The Dyslexia Debate - Or Should We Say Diatribe? - Julian Elliott

In this talk, Prof Julian Elliott, Durham University, will outline the conclusions from his book The Dyslexia Debate. Describing the sometimes outraged responses to this work, he will consider why the dyslexia label evokes powerful emotions as well as exploring tensions which emerge between the scientific considerations and the powerful drivers of personal experience and need.
https://soundcloud.com/cafeculture-northeast/episode-39
Last edited by debbie on Sun Aug 16, 2015 6:12 pm, edited 1 time in total.
Debbie Hepplewhite
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debbie
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Post by debbie »

A specialist in the field, Pam Snow, said this recently which seemed so apt regarding use, or mis-use, of the notion of 'dyslexia':

I think history has unfortunately reduced if not eliminated the usefulness of the term as a "diagnostic" descriptor, and as I've commented before, it now has the Alice in Wonderland quality of being a word that means whatever the user wants it to mean.
Pamela's blog is truly excellent and one of those 'must read' blogs that I have already flagged up on the PI forum:

http://pamelasnow.blogspot.co.uk
Debbie Hepplewhite
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debbie
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Post by debbie »

You can see from this thread about whether or not the term 'dyslexia' is helpful or appropriate that there people with different perspectives about this issue - indeed they have many different ideas of what 'dyslexia' really amounts to. Someone on a message forum wrote the message below recently which clearly describes some of the problems with using the 'dyslexia' label:

I understand all the arguments as to why having a medical-sounding term to explain their reading difficulty helps children with reading difficulties in so far as it is a recognition that they have a problem that needs to be fixed, and that it is not their fault that they have problems in learning to read.

I also see the value of having role models of others who have had similar problems, but have nevertheless succeeded.

It is shocking to me that the very people, or at least some of them. who should be helping them and be able to recognize that they have a problem and how to fix it, are so ignorant and poorly trained that they know nothing about how to teach children to read, and how to support students with reading difficulties.

And do not understand that it is their fault that so many children end up being unable to read.

But ultimately the only way to improve the self-esteem of the children who have difficulties in leaning to read is to teach them to read.

Having a label is, in itself, not going to help them to learn how to read, if it does not result in them being provided with effective intervention.

And what very often happens is that parents spend a huge amount of time and effort, and money, to get their child the label of dyslexia, in the belief that this will solve their problem.

But in most cases it changes nothing.

The schools and school systems have nothing to offer these students.

So they end up looking for a private tutor to assist their child.

If they can afford it.

And if they can find one.

Those of us who oppose the use of the term dyslexia see it as an obstacle to finding the solution to the problem.

It is an obstacle in that it distracts attention from the real problem,

Which is the failure to train teachers to teach children how to read, and to implement effective programs of reading instruction in all schools.

And at the same time to provide effective support for all those students in the school system who need it.

It is band aid solution to what is a fundamental problem with our education system, not only in Australia but in other countries such as the US, Canada and NZ.

In the UK the problem has at least been recognized, at government level.

But it seems that there is still a long way to go in implementing the changes that the UK government is trying to bring about.

With continuing resistance from both teachers and teacher educators.

As I have said before, I think that the focus of attention should not be on labeling, screening, and assessment, particularly when the acquisition of the label does not necessarily lead to any effective program of support.

I think that the focus of attention should be on the training of the teachers and the provision of effective programs for the initial teaching of reading.

And the provision of support for students with difficulties within the school system.

In the context of a response to intervention model which focuses on first teaching the child to read, and monitoring their progress.

And then providing appropriate support to those children who need it.
Precisely!
Debbie Hepplewhite
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debbie
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Post by debbie »

Great quote from Loisa Moats:

"...we have no medical treatments -no drugs, no diets, no physical therapy, no genetic engineering, no brain surgery, and no magical or quick fixes of any kind that have been shown to "cure" dyslexia. We do have a great deal of research, however, documenting the principles and content of effective instruction. "

Louisa Moats
Debbie Hepplewhite
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